This summer, I went to a 50th birthday celebration for someone who never expected to live 50 years.
The celebration was for somebody that I have known for decades. His name is George, and just like me, he has Thalassemia. We receive blood transfusions every three to four weeks, and growing up, we would often receive the transfusions together. He was already a teenager when I received my first blood transfusion as a six month old baby.
George’s 50th birthday was a milestone for every single one of us with Thalassemia. You see, George is the oldest of our Thalassemia patient group in Montreal. When he was a teenager, he was told that he would live only into his early twenties, which was a typical lifespan for a Thalassemia patient at that time.
Thalassemia patients receive multiple blood transfusions, and the excess iron received slowly builds up on the heart and liver, ultimately leading to the death of the patient at a young age. But when I was about 5 years old, a drug called an iron chelator was introduced. I was injected with this medication almost every night for 16 years. It saved our lives. Eventually, the chelator became available in pill form, replacing the painful injections.
My generation is the first to actually live a full, normal life with Thalassemia. George’s 50th birthday is a huge deal for us.
It gives us younger patients hope, and confirmation that we, too, can live to George’s age and beyond.
But we can’t do it alone. In Montreal, there are almost 50 people like George and I, living with Thalassemia. Each of us need a blood transfusion every three to four weeks to stay alive. Every transfusion requires two or three units of red blood cells.
We need you.
There will be a blood drive held at the Cité du Multimédia in Montreal at 111 Duke street on October 22nd. Our goal is 65 donations. Please consider being a donor! Call to make an appt at 1-800-343-SANG or just simply show up between 9 a.m. and 3 p.m.